|Posted by type1racing on April 28, 2010 at 2:46 PM|
So, we try to stay postive. Riley in the past few years has only had a few and I really mean that, one or two days, where he was frustrated with being diabetic. Me on the other hand, it can really become frustrating watching what diabetes does to him.
People think, oh that stinks about the shots and blood checks, so frequent that his fingers are covered with callusses, etc...and it does, but what we try not to talk about because we want to stay positive for him, is all of the unbelievable loads of crap these kids and adults have to deal with. We don't talk about the days and nights that they have to take a shot every three hours to try to keep their sugars down, or to make sure they've not dropped too low, and gone into a coma. We don't talk about having to hold him down to give him a shot because he is too high and not alert enough to do it himself. The checking of blood ketones (more pricks), or urine ketones everytime they have to pee, which is alot when he's running that high for that long (three weeks this last growth spurt).. Or even the things he misses out on when he's lying in bed in so much pain because every muscle aches. Last weekend it was an invitation to go the Allessi's to ride with them. It takes so long to try to get it all figured out. The new amount of insulin needed etc. so he can feel healthy again, and he doesn't complain throughout the whole thing, not once, he just bears it. To tell the truth I pray everyday for God to somehow give it to me instead of him. It is absolutely unbearable to watch your child suffer. Now after three weeks, it looks like maybe (cross your fingers) we have the correction rate and carb ratio figured out So hopefully he'll be riding this race on Friday. That's been his only concern. But that's just this growth spurt, we'll do it all again with a cold, or asthma attack, or for whatever other crazy reason under the sun. You call the nurses and doctors constantly, send in records, but all they can give you is suggesstions...your child is a lab rat in a sense. Nothing stays the same, it changes on a daily basis, activity level, emotions, everything. It breaks my heart because he just wants to be a 'normal' kid. He wants to go to school, but what we've found there is that they won't take the few minutes to read the literature or inform PE teachers or other teachers (playground help) of the symptoms of hypo or hyper glycemia. They say totally uneducated things and belitttling things to him because they haven't taken the 5 minutes to read the literature I've supplied. He wants to play with his friends, and most of all he wants to ride. And it's always on the fence. We are thank ful for every day, full of an amount of gratitude that only a parent with a sick child could understand....even the most discouraging of days because he is still here with us..
That's why we try our hardest to educate people about type 1 diabetes....that's why type1racing is so important to us...to maybe one day save someone's life, because it really is their life that is in jepordary.
So maybe next time you see Riley gearing up and riding his heart out you'll have a little more respect for him and know that he went through hell to get to that race and to tear it up.
I could go on and on but basically diabetes really is a battle, and my son is my hero.